Biomechanics and Motion Analysis

Application of Stance Control Orthosis in Patients with Inclusion Body Myositis

Principle Investigator: Terry Oh, M.D.
Project Coordinator: Kathie Bernhardt — bernhardt.kathie@mayo.edu

Inclusion Body Myositis (IBM) is the most common muscle disease in adults older than 50 years and is characterized by muscle weakness that frequently makes walking both difficult and unsafe, resulting in dangerous falls. Long leg braces are frequently prescribed to provide knee joint stability for people with weakness of this type. These braces are typically made with hinged joints that lock the knee in a straight position when a person is standing, thus providing knee stability to the patient. These braces, however, have the disadvantage of making walking difficult and less energy efficient, and require significant compensation on the unbraced side. Recent developments in KAFO orthotic technology have led to a new stance control orthoses (SCO) which provide stability during stance while allowing free knee motion during the swing phase of gait. This approach seems ideal for people with IBM and knee instability, and it is hoped that this new brace design will make walking easier in patients with IBM.

This study is designed to investigate the potential benefits of this new brace for people with IBM. Seven participants with IBM are enrolled. Gait analysis, strength measurements, questionnaires, and a functional timed walking test are conducted initially without the knee brace. Participants are then fit with the brace and allowed to use it in their home environment for six months, and then return for repeat testing using the brace. Currently, all participants have undergone initial testing and have been fitted with the SCO. We are in the process of seeing participants for repeat testing.