About the Program
A dedicated, multidisciplinary team of Mayo Clinic physicians, researchers and other study staff members in the Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) are working together to discover and apply innovative solutions for HLHS.
HLHS is a rare, complex form of congenital heart disease in which the left side of a child's heart is severely underdeveloped. The cause of HLHS is unknown, and treatment generally requires a series of surgeries. Though post-surgery outlook is good and many people with HLHS live nearly normal lives, there is always the chance that a heart transplant may be needed in the future.
Vision and goal
Toward a vision of delaying or preventing heart transplantation for people with HLHS, the program's overall goal is to initiate clinical trials that bring the latest advances in cell therapy to people with HLHS.
To accomplish this goal and achieve the program's vision, Mayo physicians and scientists are collaboratively working on four strongly connected objectives:
Finding solutions for a disease as complex as HLHS requires teamwork, which is why the Program for HLHS takes a highly integrated approach.
Led by a comprehensive core group of Mayo Clinic physicians and scientists — including specialists in pediatric cardiology, cardiovascular diseases and regenerative medicine — the program also has a fully dedicated staff with expertise in biomedical informatics, biospecimens management, information technology, and family education and subject participation.
Additional support comes from Mayo research staff members who dedicate some portion of their time to the program, such as postdoctoral fellows, laboratory personnel, genomics experts, sonographers and administrators.
© 2013 Mayo Foundation for Medical Education and Research. All rights reserved.