To study hypoplastic left heart syndrome (HLHS), Mayo Clinic researchers in the Todd and Karen Wanek Family Program for HLHS are assembling family histories, gathering tissue and cell samples, collecting genomic information, and obtaining cardiac images from people with HLHS and their relatives.
To maximize the usefulness of this vast amount of information and material, all of it is being combined in one place: a secure vault called a biorepository. A key piece of Program for HLHS infrastructure, the biorepository allows for continued learning about the causes of and possible treatments for HLHS.
Within the biorepository component of the Program for HLHS, investigators aim to:
The HLHS biorepository will house and link together samples and data collected within the program's other three components. This includes:
If you have questions about the HLHS biorepository or would like to learn more about contributing to it, please contact:
Karen P. Krucker, R.N.
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