Researchers in the Pediatric Rehabilitation group have several focused projects underway. In the area of postural orthostatic tachycardia syndrome in adolescents, three posters were prepared for presentation at national meetings:
Recently, we received IRB approval to proceed with a study of normal orthostatic blood pressure and heart rate values in 500 adolescents in the Rochester high school system. This will help us better understand the range of normal values for orthostatic checks in the office. In collaboration with the Shriner's Hospitals for Children in Minneapolis, we are conducting a retrospective review of functional outcomes after a selective dorsal rhizotomy in children who have spastic cerebral palsy. Additional projects in the planning stages or awaiting approval include "Comparison of Shoulder Kinematics Between Children with Pectus Excavatum and Typically Developing Children: A Pilot Study," a gait lab study looking at outcomes after a treatment protocol with TheraTogs™ and functional outcomes after participation in a pain management program in adolescents with chronic pain. We are also working in collaboration with pediatric neurology on IRB approved projects including "Clinical Trials for Pediatric Spinal Muscular Atrophy (SMA) Open Label Pilot Trial of Rilutek in Infants with SMA" and "Quality of Life in Duchenne Muscular Dystrophy."
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