Midwest Advocacy Project (MAP)
- Mayo Clinic TBIMS will conduct one site specific research project for the 2007-2012 NIDRR funding cycle
- Midwest Advocacy Project (MAP) was selected because
- It meets a chronic need clearly identified by individuals with TBI, their families and significant other
- It builds on our previous NIDRR funded research
- It was unanimously endorsed by the consumer and professional member of our Regional TBI Advisory Council
- It capitalized on the strengths of Mayo Clinic's TBIMS research program and clinical practice with well established community linkages including past successful collaboration with the regional Brain Injury Associations (BIA)
- First randomized clinical trial of its kind
- Scientifically test the efficacy of advocacy training for individuals with TBI, their families and significant others in effective self and system advocacy skills to improve their health and that of their communities
- Target populations are individuals with TBI, their families and significant others in three contiguous Midwest states, the regional state BIAs, public policy makers, the TBI research community, and other health care professionals
- Completed in three Phases
- Development of TBI-specific measures of advocacy activity and of perceived control and self-efficacy to be used in Phase 2
- Implementation and evaluation of the MAP in three contiguous Midwest states
- Assessing the MAP's state-wide impact on the greater TBI community, state systems and public policy change, and on the media
- Participants of the study will be involved in the implementation, evaluation, and dissemination phases
You Can Help (Participate)
- Get involved
- Help advance the science of TBI research
- Mayo Clinic TBI Model System is partnering with the Brain Injury Associations of Minnesota, Iowa, and Wisconsin
- Participate in a study to identify best teaching method for advocacy to people affected by TBI
- If you are at least 18 years old and a person of or family member/significant other affected by a moderate to severe TBI one year ago or more
- Must be able to attend four monthly training sessions in Minneapolis, Des Moines or Madison depending on your state of residence
- Travel expenses provided for those residing at least 60 miles from training site
- Research stipend provided upon completion of the four sessions
- Intent is to train dedicated and passionate survivors of brain injury and family members to be effective self-advocates, advocates for others and community organizers
For additional information and an application:
- Contact the Brain Injury Association of Minnesota, toll-free, at 1-800-669-6442
- Brain Injury Association of Iowa, toll-free, at 1-800-444-6443
- Brain Injury Association of Wisconsin, toll-free, at 1-800-882-8292
